Sunday, 17 April 2011
Zip code lottery of life & death for Russian kids with Hunter's
Many Russian children suffering from rare forms of hereditary illnesses die because their treatment is too expensive for their families. But it seems there is now hope of free treatment for such seriously ill kids. The immense cost of treating children with Hunter syndrome is usually impossible for parents to meet. The money is available, but the problem is it is not easy to access. Hunter syndrome is an inherited condition that mostly affects boys. It is a disease in which long chains of sugar molecules are not broken down correctly and build up in the body leading to worsening of mental functions and death.
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Posted by Irishgreeneyes at 09:38